We have been waiting to post since things have been a roller coaster to see what time would tell. Time is not painting a very good scenario for our precious little girl. She has remained on valium and muscle relaxer all week and yet she still remains very irritable and in very obvious discomfort at best 95% of the time. It seems the only time she isn't irritable or in discomfort is when she finally exausts herself from little to no sleep.



They have literally performed any kind of test and consultation you could imagine and all indications point to the significant brain trauma she has experienced. It has become very apparent that her being in arrest and the hour spent trying to intubate her was a catastrophic event. The doctors whom specialize in brain trauma have explained to us that children who experience the type and amount of trauma she has have a strong tendency to not fair so well. That in addition to Maddie's pre-existing diagnosis does not bode well for her at all.



Our focus now is her being comfortable. She has been struggling for quite some time now and does not deserve to be in such pain. Again we could not be prouder of the way she has fought so bravely. We just pray that she can be as comfortable as possible and ask all of you to do the same.

Ann, Rick and Maddie