We are happy to relay to all that significant progress has been made in Maddie achieving a decent level of comfort. A couple of new meds have been added to the mix and they have been instrumental in greatly reducing any kind of pain she was in. She is heavily medicated throughout the day, therefore sleeping a majority of it. While this is not the state we prefer to see her in, it is a thousand times better than our only other option which is for her to suffer in pain.

We are hopeful that we may be able to bring her home by the end of next week. Feeds have been reintroduced and she is up to 32 ml/hour which is all they are requiring for her to be released. She has been at that level for 24 hours now and we are keeping our fingers crossed that she will continue to tolerate the feeds. Aside from that, the Doctors just want a little more time to tweak her current meds and find the perfect balance for her. She has been requiring occasional doses of morphine to treat pain and they would like to be able to eliminate those occurrences.

We will keep you all posted.

Ann, Rick and Maddie