GREAT NEWS to report to all of you: Maddie had a series of neurological tests performed on her this morning to determine if she has any kind of nerve or muscle diseases and both her muscles and nerves were found to be completely normal. This is a major victory for Maddie and a huge relief to Annie and I as this was a major concern of ours. This would seemingly point to her contracture issues being tendon related which is the bset case scenario for Maddie's future.
We can now focus on getting her up to speed on bottle feeds;she is currently taking about 1/2 an ounce per feeding from a bottle. They have told us that they will give her 2 weeks to get up to the 3 1/2 to 4 ounce mark via bottle or else they will have to do a surgery and insert a feeding tube into her stomach. Right now nutrition is the most important thing for her to get healthy and the tube would be necessary in order for her to maintain her health. We pray and hope that all of you will continue to do the same that Maddie may conquer the bottle and come home to all of us soon.
Thanks again and God Bless
Richard and Annie