Hello,

Maddie is doing well, however she has a busy day in front of her. Aside from the issues from our last update Maddie has what they call contractures in her major joints. Basically her muscles never really developed in the womb so she needs to learn how to bend and straighten her knees, elbows, wrists and fingers on her own through physical and occupational therapy. Last night she was fitted for some braces to help straighten out her knees and they will hopefully be putting those on her today.

We spoke with the Doctor last night and he anticipates a surgery taking place soon on her diaphragm to correct the “floppiness” on the one side. We have placed calls to both the Pulmonary surgeon as well as the Genetic specialists to talk about the surgery so we will keep you all informed as we hear from them. We are obviously vey nervous about any kind of surgery however upon completion this will hopefully have her breathing stable on her own.

Hope you enjoy the picture of our little angel; she is even more precious in person. We can’t wait to bring her home so you can all meet her in person. Take care and God Bless

Richard and Annie